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Adverse EventsRace, Inequality, and the Testing of New Pharmaceuticals$
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Jill A. Fisher

Print publication date: 2020

Print ISBN-13: 9781479877997

Published to NYU Press Scholarship Online: January 2021

DOI: 10.18574/nyu/9781479877997.001.0001

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PRINTED FROM NYU Press SCHOLARSHIP ONLINE (www.nyu.universitypressscholarship.com). (c) Copyright University of NYU Press Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in NYSO for personal use.date: 17 June 2021

A Tale of Three Cultures

A Tale of Three Cultures

Chapter:
(p.75) 3 A Tale of Three Cultures
Source:
Adverse Events
Author(s):

Jill A. Fisher

Publisher:
NYU Press
DOI:10.18574/nyu/9781479877997.003.0004

Despite similar financial goals among healthy volunteers, there are regional differences in the culture of Phase I participation. Chapter 3 focuses on this theme to further unpack variations in how patterns of imbricated stigma influence healthy volunteers’ perceptions of Phase I trials, particularly with respect to the longevity of their study involvement. Specifically, East Coast participants tend to be well-networked as part of their long-term, active pursuit of clinical trials, but they often also express anti-capitalist critiques of the industry. In comparison, Midwesterners tend to be more passive about their trial participation, thinking of it as a short-term financial opportunity to counterbalance a temporary setback. West Coast participants occupy a hybrid culture between those of the East Coast and Midwest participants, actively seeking out new studies but expressing a distrust in the clinics and wanting to limit their study involvement. These regional cultures act as a prism for healthy volunteers’ perceptions of Phase I trials, shaping whether and how they adopt identities as research participants.

Keywords:   Phase I trials, healthy volunteers, clinical trial culture, United States, identity, research participation, imbricated stigma, regional differences

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