Jump to ContentJump to Main Navigation
Adverse EventsRace, Inequality, and the Testing of New Pharmaceuticals$
Users without a subscription are not able to see the full content.

Jill A. Fisher

Print publication date: 2020

Print ISBN-13: 9781479877997

Published to NYU Press Scholarship Online: January 2021

DOI: 10.18574/nyu/9781479877997.001.0001

Show Summary Details
Page of

PRINTED FROM NYU Press SCHOLARSHIP ONLINE (www.nyu.universitypressscholarship.com). (c) Copyright University of NYU Press Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in NYSO for personal use.date: 03 December 2021

A Tale of Three Cultures

A Tale of Three Cultures

(p.75) 3 A Tale of Three Cultures
Adverse Events

Jill A. Fisher

NYU Press

Despite similar financial goals among healthy volunteers, there are regional differences in the culture of Phase I participation. Chapter 3 focuses on this theme to further unpack variations in how patterns of imbricated stigma influence healthy volunteers’ perceptions of Phase I trials, particularly with respect to the longevity of their study involvement. Specifically, East Coast participants tend to be well-networked as part of their long-term, active pursuit of clinical trials, but they often also express anti-capitalist critiques of the industry. In comparison, Midwesterners tend to be more passive about their trial participation, thinking of it as a short-term financial opportunity to counterbalance a temporary setback. West Coast participants occupy a hybrid culture between those of the East Coast and Midwest participants, actively seeking out new studies but expressing a distrust in the clinics and wanting to limit their study involvement. These regional cultures act as a prism for healthy volunteers’ perceptions of Phase I trials, shaping whether and how they adopt identities as research participants.

Keywords:   Phase I trials, healthy volunteers, clinical trial culture, United States, identity, research participation, imbricated stigma, regional differences

NYU Press Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs, and if you can't find the answer there, please contact us.