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Save My Kid – How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System - NYU Press Scholarship Online
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Save My Kid: How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System

Amanda M. Gengler

Abstract

In “Save My Kid,” sociologist Amanda Gengler examines how families of critically ill children navigate the US healthcare system. Not all families are equipped with resources for critically ill kids, but the toolkits that are available to them shape their approach to seeking care and negotiating the treatment process, as well as their ability to maintain some degree of emotional stability in the midst of profound distress. ”Save My Kid” uncovers the powerful role emotional goals—deeply rooted in the emotional culture around illness and medicine in the United States—can play in driving medical d ... More

Keywords: critically ill children, care-captaining in medicine, care-entrusting in medicine, healthcare inequalities for critical illness, critical illness management

Bibliographic Information

Print publication date: 2020 Print ISBN-13: 9781479863938
Published to NYU Press Scholarship Online: September 2020 DOI:10.18574/nyu/9781479863938.001.0001

Authors

Affiliations are at time of print publication.

Amanda M. Gengler, author
Wake Forest University