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Democratizing InequalitiesDilemmas of the New Public Participation$
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Caroline W. Lee, Michael McQuarrie, and Edward T. Walker

Print publication date: 2015

Print ISBN-13: 9781479847273

Published to NYU Press Scholarship Online: March 2016

DOI: 10.18574/nyu/9781479847273.001.0001

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PRINTED FROM NYU Press SCHOLARSHIP ONLINE (www.nyu.universitypressscholarship.com). (c) Copyright University of NYU Press Press, 2019. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in NYSO for personal use.date: 20 October 2019

Patient, Parent, Advocate, Investor

Patient, Parent, Advocate, Investor

Entrepreneurial Health Activism from Research to Reimbursement

Chapter:
(p.143) Chapter 8 Patient, Parent, Advocate, Investor
Source:
Democratizing Inequalities
Author(s):

David Schleifer

Aaron Panofsky

Publisher:
NYU Press
DOI:10.18574/nyu/9781479847273.003.0008

This chapter examines a phenomenon called entrepreneurial health activism, which emerged as a response to what its advocates believe are the limitations of traditional health activism. It shows how entrepreneurial health activists lobby and raise public awareness about diseases and their treatment while disrupting some conventional modes of governing business and science, including intellectual property rights. Entrepreneurialism expands the range of practices available to health activists, with potential benefits for certain disease communities, while also unsettling standard critiques of conflict of interest. However, this chapter argues that entrepreneurial health activism can further exacerbate existing inequalities in the distribution of health care resources.

Keywords:   entrepreneurial health activism, health activism, diseases, treatment, intellectual property rights, conflict of interest, entrepreneurialism, health care

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