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UnexpectedParenting, Prenatal Testing, and Down Syndrome$
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Alison Piepmeier

Print publication date: 2021

Print ISBN-13: 9781479816637

Published to NYU Press Scholarship Online: September 2021

DOI: 10.18574/nyu/9781479816637.001.0001

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PRINTED FROM NYU Press SCHOLARSHIP ONLINE (www.nyu.universitypressscholarship.com). (c) Copyright University of NYU Press, 2022. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in NYSO for personal use.date: 27 June 2022

“I Wouldn’t Change You If I Could”

“I Wouldn’t Change You If I Could”

Disability as a Form of Human Diversity

(p.1) 1 “I Wouldn’t Change You If I Could”

Alison Piepmeier

George Estreich

Rachel Adams

NYU Press

When Alison Piepmeier finds out that her intentional pregnancy might result in a child with Down syndrome, she shares her anxiety with readers of her blog. With many of them assuring her that she’ll probably not have a baby with a disability, Alison looks elsewhere for reassurance. Three activists, who are also parents of children with Down syndrome, embody the evolution in popular thought about Down syndrome and other conditions. Emily Perl Kingsley, Cindi May, and Stephanie Meredith experienced society’s evolving view of disability with their children. Each woman has worked toward presenting disability as part of the diversity of human beings. With time, Alison learns that her daughter, Maybelle, need not attain cultural definitions of normal and that Maybelle’s valued personhood demands broader societal recognition.

Keywords:   Down syndrome, diversity, pregnancy, Emily Perl Kingsley, Cindi May, Stephanie Meredith, societal recognition

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