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Personalized MedicineEmpowered Patients in the 21st Century?$
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Barbara Prainsack

Print publication date: 2017

Print ISBN-13: 9781479814879

Published to NYU Press Scholarship Online: September 2018

DOI: 10.18574/nyu/9781479814879.001.0001

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Just Profit?

Just Profit?

Chapter:
(p.107) 5 Just Profit?
Source:
Personalized Medicine
Author(s):

Barbara Prainsack

Publisher:
NYU Press
DOI:10.18574/nyu/9781479814879.003.0005

In the literature, striving for financial profits and shareholder value is often contrasted with the quest to create social value and societal wellbeing. The ways that today’s health entrepreneurism is organized, however, do not fit this distinction. Rather, it takes place within a political economy that encourages the marriage of social benefit and capitalism. Also, personalized medicine unfolds in a situation where it assumed that commons and commerce can and should be aligned. What does this mean for patient participation? Are all contributions that patients make to medical practice and research, in terms of data, time, and effort inevitably also creating value for private corporations, and is there something that we should and could do to prevent this?

Keywords:   corporations, patient participation, creating social value, data contribution

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