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Personalized MedicineEmpowered Patients in the 21st Century?$
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Barbara Prainsack

Print publication date: 2017

Print ISBN-13: 9781479814879

Published to NYU Press Scholarship Online: September 2018

DOI: 10.18574/nyu/9781479814879.001.0001

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Always On

Always On

The Transmitting Patient

(p.46) 3 Always On
Personalized Medicine

Barbara Prainsack

NYU Press

In contrast to expectations ten years ago—and to most portrayals in films and popular media—current iterations of personalized medicine do not include any plans to sequence everybody’s DNA at birth. Genetic and genomic information play a role in personalized medicine, but they are only one instrument in a much larger orchestra. What visions of personalized medicine do entail, however, is that ever wider ranges of information about people’s bodies and lives will be brought together into personalized “health maps,” and that remote sensors and other ways of unobtrusively monitoring patients will be used much more widely. Also, the dividing line between monitoring for wellness and lifestyle (for example, Fitbit) and monitoring for medical purposes (for example, telecare) is blurring. How do these practices and developments affect concepts of privacy, and what needs to be done to protect the interests of patients and civil society?

Keywords:   Fitbit, telecare, privacy

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