The Meaning of Memory Loss
The Meaning of Memory Loss
Illness, Identity, and Biography
This introductory chapter presents the topic of the book, Alzheimer’s illness narratives, and outlines the remaining chapters. While AD is currently constructed as a problem of epidemic proportion, such perceptions were not always the case. Scientific debate about the qualitative difference between age-related memory loss and Alzheimer’s persists, as does skepticism regarding the efficacy of treatment alternatives. Yet the overwhelming majority of research efforts and monies remain narrowly focused on cause and cure. This focus on prevention erases the everyday lived experiences of AD for those currently diagnosed and their family members alike. Contemporary epidemiological projections engender a crisis rhetoric that may contribute to mis-/overdiagnoses of Alzheimer’s and mild cognitive impairment, and/or the conflation of memory loss and AD. In the 110-year quest to understand Alzheimer’s, and the rhetoric of global devastation and annihilation of selfhood which have accompanied it, we too often ignore the very experiences of the condition.
Keywords: Alzheimer’s illness narratives, misdiagnosis, overdiagnosis, lived experiences of AD, crisis rhetoric, mild cognitive impairment
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